{"id":1730,"date":"2026-07-02T16:43:08","date_gmt":"2026-07-02T16:43:08","guid":{"rendered":"https:\/\/avrupatv.eu\/?p=1730"},"modified":"2026-07-02T16:46:15","modified_gmt":"2026-07-02T16:46:15","slug":"anne-ayaklarim-neden-seninkiler-gibi-degil-dmd-hastasi-kaan-icin-zamana-karsi-yaris","status":"publish","type":"post","link":"https:\/\/avrupatv.eu\/index.php\/2026\/07\/02\/anne-ayaklarim-neden-seninkiler-gibi-degil-dmd-hastasi-kaan-icin-zamana-karsi-yaris\/","title":{"rendered":"“Anne, Ayaklar\u0131m Neden Seninkiler Gibi De\u011fil?” DMD Hastas\u0131 Kaan \u0130\u00e7in Zamana Kar\u015f\u0131 Yar\u0131\u015f"},"content":{"rendered":"\n

Mersin’in Mezitli il\u00e7esinde ya\u015fayan 10 ya\u015f\u0131ndaki DMD hastas\u0131 Kaan Boz i\u00e7in valilik onayl\u0131 yard\u0131m kampanyas\u0131 haziran ay\u0131n\u0131n ilk haftas\u0131nda ba\u015flad\u0131. Pilot olmay\u0131 hayal eden Kaan’\u0131n annesi, Avrupa TV’ye konu\u015ftu. Bir yandan umutlu, bir yandan zamanla yar\u0131\u015ft\u0131klar\u0131n\u0131 s\u00f6yleyen anne, “Kaan’\u0131n y\u00fcr\u00fcyebilmesi i\u00e7in herkesin deste\u011fine ihtiyac\u0131m\u0131z var” dedi.<\/strong><\/p>\n\n\n\n

“\u00d6ncelikle Kaan’\u0131 bize anlat\u0131r m\u0131s\u0131n\u0131z?”<\/h2>\n\n\n\n

Kaan 10 ya\u015f\u0131nda ve tek \u00e7ocu\u011fum. \u00c7ok ne\u015feli, g\u00fclmeyi seven, \u00e7evresine mutluluk sa\u00e7an bir \u00e7ocuk. Ayn\u0131 zamanda olduk\u00e7a inat\u00e7\u0131d\u0131r. Y\u00fczmeyi \u00e7ok seviyor. Y\u00fczme kursuna gidiyor, ah\u015fap boyama ve g\u00fczel sanatlar kurslar\u0131na kat\u0131l\u0131yor. Elinden geldi\u011fince hayat\u0131n i\u00e7inde olmaya \u00e7al\u0131\u015f\u0131yor.<\/p>\n\n\n\n

“Kaan’\u0131n en b\u00fcy\u00fck hayali nedir?”<\/h2>\n\n\n\n

En b\u00fcy\u00fck hayali pilot olmak. S\u00fcrekli bana “Anne, ben ne zaman y\u00fcr\u00fcyece\u011fim?” diye soruyor. Y\u00fcr\u00fcmeyi, ko\u015fmay\u0131, bisiklete binmeyi \u00e7ok istiyor.<\/p>\n\n\n\n

“G\u00fcnl\u00fck hayat\u0131 nas\u0131l ge\u00e7iyor?”<\/h2>\n\n\n\n

G\u00fcnlerimiz de\u011fi\u015fiyor. Sal\u0131 g\u00fcnleri fizik tedaviye gidiyoruz. Sonras\u0131nda genellikle kahvalt\u0131 yap\u0131p sahile gitmek ya da havuza girmek istiyor. Ancak okula gitmek istemiyor. S\u00fcrekli a\u011fl\u0131yor. Ya\u015f\u0131tlar\u0131n\u0131 g\u00f6r\u00fcnce psikolojik olarak \u00e7ok etkileniyor. Arkada\u015flar\u0131n\u0131n rahat\u00e7a ko\u015fup oynayabilmesi onu derinden \u00fcz\u00fcyor.<\/p>\n\n\n\n

“DMD tan\u0131s\u0131 nas\u0131l konuldu?”<\/h2>\n\n\n\n

Kaan’a 4 ya\u015f\u0131nda DMD tan\u0131s\u0131 konuldu. Asl\u0131nda 2 ya\u015f\u0131ndayken kan de\u011ferlerinde bir problem oldu\u011fu fark edilmi\u015fti. Ancak bize s\u00fcrekli d\u00fcz taban oldu\u011fu s\u00f6ylendi. 4 ya\u015f\u0131na geldi\u011finde merdiven \u00e7\u0131karken zorland\u0131\u011f\u0131n\u0131 fark ettik. \u00dcniversite Hastanesi’nde yap\u0131lan genetik ve kan testlerinin ard\u0131ndan DMD oldu\u011fu kesinle\u015fti.<\/p>\n\n\n\n

“Bu s\u00fcre\u00e7 Kaan’\u0131 nas\u0131l etkiledi?”<\/h2>\n\n\n\n

Bir d\u00f6nem \u00e7ok h\u0131r\u00e7\u0131nla\u015fm\u0131\u015ft\u0131. \u00c7\u00fcnk\u00fc hasta oldu\u011funu anlamaya ba\u015flam\u0131\u015ft\u0131. O s\u00fcre\u00e7 bizim i\u00e7in \u00e7ok zordu. Psikolojik destek ald\u0131k. \u015eimdi biraz daha iyi ama h\u00e2l\u00e2 bana s\u00fcrekli “Anne, ayaklar\u0131m seninkiler gibi neden de\u011fil?” diye soruyor. Ben de elimden geldi\u011fince anlatmaya \u00e7al\u0131\u015f\u0131yorum.<\/p>\n\n\n\n

“Valilik onayl\u0131 kampanya ba\u015flad\u0131\u011f\u0131nda neler hissettiniz?”<\/h2>\n\n\n\n

Bir yan\u0131m \u00e7ok mutlu oldu. \u00c7\u00fcnk\u00fc art\u0131k resmi olarak umut kap\u0131m\u0131z a\u00e7\u0131lm\u0131\u015ft\u0131. Ama di\u011fer yan\u0131m s\u00fcrekli “Acaba bu para toplanabilecek mi?” diye d\u00fc\u015f\u00fcnmeye ba\u015flad\u0131. Bir s\u00fcre karamsarl\u0131k ya\u015fad\u0131m. Sonra ailem ve \u00e7evrem bana b\u00fcy\u00fck destek verdi. Bu destek yeniden umutlanmam\u0131 sa\u011flad\u0131.<\/p>\n\n\n\n

“Hedefiniz nedir?”<\/h2>\n\n\n\n

Hedefimiz 2 milyon 900 bin dolar toplamak. Valilik bize bunun i\u00e7in bir y\u0131ll\u0131k izin verdi. Bu s\u00fcre i\u00e7erisinde kampanyay\u0131 tamamlamak istiyoruz.<\/p>\n\n\n\n

“Zaman neden bu kadar \u00f6nemli?”<\/h2>\n\n\n\n

Kaan’\u0131n ula\u015fmaya \u00e7al\u0131\u015ft\u0131\u011f\u0131 tedavi Elevidys ilac\u0131. Bu ila\u00e7 y\u00fcr\u00fcyebilen \u00e7ocuklar i\u00e7in uygulan\u0131yor. DMD hastalar\u0131nda \u00e7ocuklar genellikle 11-12 ya\u015flar\u0131ndan sonra y\u00fcr\u00fcyemiyor. \u00d6n\u00fcm\u00fczdeki y\u0131l Kaan’\u0131n da y\u00fcr\u00fcme yetisini kaybetme ihtimali var. E\u011fer y\u00fcr\u00fcyemezse bu tedaviden yararlanma \u015fans\u0131 b\u00fcy\u00fck \u00f6l\u00e7\u00fcde azalacak. Bu y\u00fczden bizim i\u00e7in her g\u00fcn \u00e7ok de\u011ferli.<\/p>\n\n\n\n

“Kampanyan\u0131n ilk g\u00fcnlerinde nas\u0131l geri d\u00f6n\u00fc\u015fler ald\u0131n\u0131z?”<\/h2>\n\n\n\n

Bekledi\u011fimden \u00e7ok daha fazla destek g\u00f6rd\u00fcm. Valilik onay\u0131n\u0131n ard\u0131ndan telefonum hi\u00e7 susmad\u0131. \u00c7evremdeki insanlar aray\u0131p destek olmak istediklerini s\u00f6yledi. Bu ilgi bana yeniden umut verdi.<\/p>\n\n\n\n

“Bir anne olarak sizi en \u00e7ok zorlayan \u015fey nedir?”<\/h2>\n\n\n\n

Kendime hi\u00e7 vakit ay\u0131ram\u0131yorum. S\u00fcrekli Kaan’\u0131n yan\u0131nday\u0131m. B\u00fct\u00fcn ihtiya\u00e7lar\u0131n\u0131 ben kar\u015f\u0131l\u0131yorum. Bu ister istemez insan\u0131 yoruyor. Kaan’\u0131n babas\u0131 bu s\u00fcre\u00e7te yeterince destek olmad\u0131. Hatta almak istedi\u011fimiz ak\u00fcl\u00fc sandalyede bile yard\u0131mc\u0131 olmad\u0131. Sa\u011f olsun ba\u015fka bir arkada\u015f\u0131m\u0131z yard\u0131mc\u0131 oldu. Tek ba\u015f\u0131na m\u00fccadele eden bir anne olarak ayakta kalmaya \u00e7al\u0131\u015f\u0131yorum.<\/p>\n\n\n\n

En \u00e7ok da parka gitti\u011fimizde \u00fcz\u00fcl\u00fcyorum. Kaan’\u0131n arkada\u015flar\u0131n\u0131 izleyip “Ke\u015fke ben de onlar gibi oynayabilsem.” diyen bak\u0131\u015flar\u0131n\u0131 g\u00f6rmek beni tarif edemeyece\u011fim kadar yaral\u0131yor.<\/p>\n\n\n\n

“Size en \u00e7ok g\u00fc\u00e7 veren \u015fey nedir?”<\/h2>\n\n\n\n

Kaan’\u0131n g\u00fcl\u00fcmsemesi… Ne ya\u015farsa ya\u015fas\u0131n yine de g\u00fcl\u00fcmseyebiliyor. O g\u00fcl\u00fcmseme bana yeniden m\u00fccadele etme g\u00fcc\u00fc veriyor.<\/p>\n\n\n\n

“Gelece\u011fe dair en b\u00fcy\u00fck hayaliniz nedir?”<\/h2>\n\n\n\n

Tek iste\u011fim Kaan’\u0131n sa\u011fl\u0131\u011f\u0131na kavu\u015fmas\u0131. Bisiklete binebilmesini, ko\u015fabilmesini g\u00f6rmek istiyorum. En b\u00fcy\u00fck hayali pilot olmak. \u0130n\u015fallah bir g\u00fcn o hayaline de ula\u015f\u0131r.<\/p>\n\n\n\n

“\u0130nsanlar Kaan’a nas\u0131l destek olabilir?”<\/h2>\n\n\n\n

Ba\u011f\u0131\u015f yapabilirler. Kampanyam\u0131z\u0131 sosyal medyada payla\u015fabilirler. G\u00f6n\u00fcll\u00fc ekibimize kat\u0131labilirler. K\u00fc\u00e7\u00fck ya da b\u00fcy\u00fck demeden her destek bizim i\u00e7in \u00e7ok k\u0131ymetli.<\/p>\n\n\n\n

“Yurt d\u0131\u015f\u0131nda ya\u015fayan vatanda\u015flara ne s\u00f6ylemek istersiniz?”<\/h2>\n\n\n\n

Yurt d\u0131\u015f\u0131nda ya\u015fayan vatanda\u015flar\u0131m\u0131z\u0131n deste\u011fi bizim i\u00e7in \u00e7ok \u00f6nemli. Avrupa’da ya\u015fayan insanlar\u0131m\u0131z\u0131n yapaca\u011f\u0131 her payla\u015f\u0131m, kampanyam\u0131z\u0131n binlerce ki\u015fiye ula\u015fmas\u0131n\u0131 sa\u011flayabilir. Belki bir payla\u015f\u0131m, belki k\u00fc\u00e7\u00fck bir ba\u011f\u0131\u015f, Kaan’\u0131n gelece\u011fini de\u011fi\u015ftirebilir. Gurbette ya\u015fayan t\u00fcm vatanda\u015flar\u0131m\u0131zdan sesimizi duyurmalar\u0131n\u0131 ve Kaan’\u0131n umut yolculu\u011funa ortak olmalar\u0131n\u0131 rica ediyorum.<\/p>\n\n\n\n

“Son olarak kamuoyuna mesaj\u0131n\u0131z nedir?”<\/h2>\n\n\n\n

Tek iste\u011fim, kampanyam\u0131za destek olmalar\u0131. Bug\u00fcn Kaan benim evlad\u0131m ama yar\u0131n ayn\u0131 durum sizin evlad\u0131n\u0131z\u0131n da ba\u015f\u0131na gelebilir. Bir annenin \u00e7ocu\u011funu g\u00f6zlerinin \u00f6n\u00fcnde yava\u015f yava\u015f erirken izlemesi tarif edilemez bir ac\u0131. Kimse bunu ya\u015famak istemez. L\u00fctfen Kaan’\u0131n sesini duyun. Birlik olursak o\u011flumun yeniden umutla gelece\u011fe bakmas\u0131n\u0131 sa\u011flayabiliriz.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n
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Mersin’in Mezitli il\u00e7esinde ya\u015fayan 10 ya\u015f\u0131ndaki DMD hastas\u0131 Kaan Boz i\u00e7in valilik onayl\u0131 yard\u0131m kampanyas\u0131 haziran ay\u0131n\u0131n ilk haftas\u0131nda ba\u015flad\u0131. Pilot olmay\u0131 hayal eden Kaan’\u0131n annesi, Avrupa TV’ye konu\u015ftu. Bir yandan umutlu, bir yandan zamanla yar\u0131\u015ft\u0131klar\u0131n\u0131 s\u00f6yleyen anne, “Kaan’\u0131n y\u00fcr\u00fcyebilmesi i\u00e7in herkesin deste\u011fine ihtiyac\u0131m\u0131z var” dedi. “\u00d6ncelikle Kaan’\u0131 bize anlat\u0131r m\u0131s\u0131n\u0131z?” Kaan 10 ya\u015f\u0131nda ve […]<\/p>\n","protected":false},"author":2,"featured_media":1736,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-1730","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-turkiye"],"yoast_head":"\n"Anne, Ayaklar\u0131m Neden Seninkiler Gibi De\u011fil?" DMD Hastas\u0131 Kaan \u0130\u00e7in Zamana Kar\u015f\u0131 Yar\u0131\u015f - Avrupal\u0131 T\u00fcrklerin en Yeni Haber Portal\u0131<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/avrupatv.eu\/index.php\/2026\/07\/02\/anne-ayaklarim-neden-seninkiler-gibi-degil-dmd-hastasi-kaan-icin-zamana-karsi-yaris\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\""Anne, Ayaklar\u0131m Neden Seninkiler Gibi De\u011fil?" 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